Upside Of Down

New Zealand Support for friends and family of people with Special Needs

Members

  • Rhonda
  • helen elliott
  • jane hawthorn
  • Lynette
  • Bridget Pirie
  • Catherine Smith
  • Amanda Hall
  • Christine Stockdale
  • Nykie Noo
  • Christelle Paulsen
  • Carol Maynard
  • jeanine reit bezencon
  • Hannah
  • Mel
  • Alison
  • Francesca Voykovich
  • Andree Pearson
  • Deb
  • Di Bull
  • Bronwyn Rydon

For friends and family of people with Down Syndrome & other Special Needs. All welcome, come and participate.

DISCLAIMER

No information posted on this website is intended to, nor does it, constitute medical or other advice. Always consult your medical doctor before acting on any information you have read

Blog Posts

Natalie Russell

AGHHHHH Relief

Posted by Natalie Russell on March 11, 2010 at 7:02pm — 4 Comments

Nykie Noo

Had a bad day.... Feel like a bleet

Posted by Nykie Noo on March 11, 2010 at 4:32pm — 10 Comments

Anna Hunt-Selwood

Adjusting to motherhood bliss

Posted by Anna Hunt-Selwood on February 13, 2010 at 9:30am — 7 Comments

Latest Activity

Rhonda updated their profile photo
6 hours ago
jane hawthorn updated their profile
8 hours ago
Amanda Hall added a photo
18 hours ago
yesterday
Francesca Voykovich added a discussion
Hi,  having problems with James applying himself (!) when unpacking his school bag and doing the usual independent morning school routine.  James works really well with visual timetables and I was wondering if anyone knew of a good website or if I c…
yesterday
Rhonda added 7 photos
yesterday
Natalie Russell added a blog post
Had Jade see the heart specialist from Auckland today, ASD and VSD vanished and no murmers... Couldnt be happier
yesterday
helen elliott is now a member of Upside Of Down
yesterday
Catherine Smith added 2 blog posts
yesterday
Nykie Noo added a blog post
We all cope... don't we. We get up, and get on with it... and I know Miah isn't sick and we have been lucky, but.... I'm sick of stupid doctors appointments & needles I'm sick of the envelopes that arrive "to the parents or guardiansof Miah Eades",…
yesterday
Nykie Noo added 3 photos
yesterday
jeanine reit bezencon Hi everyone baby dylan is doing very well had open heart op on 13th day bein very hard but got there in the end,what a little fighter.
yesterday
 

Welcome!


WELCOME TO UPSIDE OF DOWN!

Check out this article about fundraising for Upsidedowns Trust...
http://www.stuff.co.nz/auckland/local-news/north-harbour-news/3316352/Adventure-for-down-syndrome

BUDDYWALK 2010

Don't forget to check out the website for information. This year they have an alternative way to fundraise by using Everyday Hero pages! Choice eh.

http://www.buddywalknz.org/ - Check out the FUNraising tab.

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Whats going on in your area for World DS Day?
Let me know and I will pop it up here!
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Forum

Bridget Pirie

Neck xray to test for instability 10 Replies

Hello, We were thinking about starting Peter in Riding for the Disabled, and I had heard that they needed to have an xray which measures AOI (I think). So we got the xrays last week (cue much screami…

Tagged: Riding for the Disabled, Neck instability, AOI, AAI, Neck xray

Started by Bridget Pirie in Medical Advice & Experiences. Last reply by Bridget Pirie 10 hours ago.

Francesca Voykovich

Visual timetable for unpacking school bag 4 Replies

Hi,  having problems with James applying himself (!) when unpacking his school bag and doing the usual independent morning school routine.  James works really well with visual timetables and I was wo…

Started by Francesca Voykovich in Learning & Resources. Last reply by Francesca Voykovich 22 hours ago.

Andree Pearson

melatonin 3 Replies

hi has anyone used melatonin with their kids to help with sleep? i know there has been discussion about cherry juice but lachlan (5, DS)  has been presribed 3 mg melatonin (not slow release, just reg…

Started by Andree Pearson in Medical Advice & Experiences. Last reply by Bronwyn Rydon 1 day ago.

Christelle Paulsen

Just another day of nothing and fear 5 Replies

Well we are doing good...... as I explain to the family back home I'm on the calm stretch of our river I do not know what wait around the next cornet but for now I enjoy the scenery and the calm wate…

Started by Christelle Paulsen in Feelings & Emotional Support. Last reply by jane hawthorn 1 day ago.

Kirsten

I hope this doesn't happen in NZ 23 Replies

Hi   A SMS mum posted this story on FB. I hope this sort of decision doesn't happen in NZ. I think it is pretty mean that the lab clinic was held liable - there are over 2000 syndromes and SMS is so…

Started by Kirsten in Feelings & Emotional Support. Last reply by Janelle Palmer 1 day ago.

Andree Pearson

laptops at school 8 Replies

hi i'm just wondering what the deal is with laptops with our kids at school - are they entitled to them at all? is it worth asking for one when Lachlan starts this year or do we wait until he's older…

Started by Andree Pearson in Learning & Resources. Last reply by kathleen murdoch 1 day ago.

Notes

Nikolai's experience being at Kindy.

Created by Nykie Noo Nov 25, 2009 at 3:44pm. Last updated by Nykie Noo Nov. 25, 2009.

The easy-read version of the Health and Disability Consultation documents

Created by Nykie Noo Feb 10, 2009 at 12:09pm. Last updated by Nykie Noo Feb. 9, 2009.

 
 

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